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Thursday, June 22 • 10:45am - 12:00pm
#405: How Do We Retain Patients in Studies? Using the Patients’ Words to Explore Treatment Acceptance and Patient Engagement

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Component Type: Session
Level: Intermediate
CE: ACPE 1.25 Knowledge UAN: 0286-0000-17-527-L04-P; CME 1.25; IACET 1.25; RN 1.25

Over the years, it is harder to provide sites and patients with items to help retain their interest in a long-term or even short-term clinical trial. Now that the landscape has changed, how can sponsors create a solid retention strategy? Loyalty is an important, multifaceted driver of retention. We will discuss how asking the right question at the right time in the right way and in the right context is essential to establishing a strong relationship between the patient and the research team.

Learning Objectives

Discuss the holistic view in the patient retention space; Describe a multi-strategy approach to encourage long-term retention.


Benoit Arnould, PhD, MSc


Did You Get Why Patients Accept (or Not) Their Long-Term Treatment? Results from an EU Study Via Carenity Social Platform.
Benoit Arnould, PhD, MSc

Online Platform Perspective
Brian Burns, MA

Patient Perspective
James A. Seaton

Helen Kitchen, MSc

avatar for Benoit Arnould

Benoit Arnould

Senior Director, Global, Patient-Centered Outcomes, Patient Centered Sciences, Mapi
Benoit Arnould PhD is Senior Director Global, Patient-Centered Outcomes at Mapi, and has conducted studies to develop and validate Patient-reported outcome (PRO) instruments for more than 15 years. His primary interests are Endpoint Strategy and the application of Mixed Methods Research... Read More →

avatar for Brian Burns

Brian Burns

Director, Member Communications, PatientsLikeMe
Brian has been with PatientsLikeMe for 4 years, championing the online platform that is dedicated to improving outcomes and advancing research through real-world experiences. He works with top tier life-science companies to engage patients in longitudinal research and drives participation... Read More →
avatar for Helen Kitchen

Helen Kitchen

Senior Consultant, DRG Abacus
As Technical Lead in Clinical Outcomes Assessment, Helen provides strategic input on measurement strategy and patient outcomes research. Helen has worked in outcomes research for over 8 years and has developed and validated COAs including patient-reported outcome (PRO) and clinician-reported... Read More →
avatar for James Seaton

James Seaton

Executive Consultant, Seaton Associates, LLC
A patient who personally balances benefits & risks of treatments for four chronic conditions. Also, as founder of Seaton Associates, LLC, Think Training, Inc. and Communications Development Service, a learning professional who helps NGOs, communities, non-profits, State & Federal... Read More →

Thursday June 22, 2017 10:45am - 12:00pm CDT
N426c McCormick Place 2301 South Martin Luther King Jr. Drive, Gate 4 Chicago, IL 60616
  04: PatientEngagement, Session