Co-Founder/Founding President, Friedreich's Ataxia Research Alliance (FARA)
Co-founder/President, FARA, Board of Directors, NORD; NIH/NINDS National Advisory Council; partner/president, government affairs firm; 20 yrs federal service in defense, foreign policy & intelligence; U.S. Delegation to Intermediate-Range Nuclear Forces (INF) Treaty talks, Geneva...
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Senior VP, Chief Patient Officer and Global Head of Patient Centricity, Sanofi
Dr. Anne C. Beal, is the Chief Patient Officer at Sanofi. She is responsible for integrating the patient voice and priorities into all aspects of Sanofi’s work to facilitate development of healthcare solutions that truly meet patients’ needs. Dr. Beal joined Sanofi from PCORI...
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Head of Public Engagement Department, European Medicines Agency (EMA)
Juan Garcia Burgos is Head of Public Engagement Department and Co-chair of the EMA patients’ & healthcare professionals’ working parties. He is a Medical Doctor specialised in urology. In 2002 he joined the EMA to coordinate the preparation of EU clinical guidelines for drug development...
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Associate Director for Patient Outcomes (Acting), OCE, FDA
Paul G. Kluetz, M.D., is a medical oncologist and the Acting Associate Director of Patient Outcomes in the Oncology Center of Excellence at the U.S. FDA. He is interested in defining clinical benefit in oncology trials, the use of expedited programs such as accelerated approval and...
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Head, Health Biosciences Practice, FaegreBD Consulting
Debra Lappin serves as a principal with Faegre Baker Daniels Consulting, where she leads the health and biosciences team, and as counsel with Faegre Baker Daniels. She consults with public, private and nonprofit entities across the life science sector and is a creative force in forging...
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Managing Director, FasterCures, A Center of the Milken Institute
Kim leads the Patients Count: Science of Patient Input program through which FasterCures aims to improve health by expanding opportunities for patients’ perspectives to shape the processes by which new therapies are discovered, developed and delivered. She has been involved in FasterCures...
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